Amy Kuebelbeck is a freelance writer and former reporter and editor for The Associated Press and other news organizations. She describes her experience of continuing a pregnancy with a terminal prenatal diagnosis in her memoir, Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life (Loyola Press, 2003), represented by literary agent Brian DeFiore of
DeFiore and Company Author Services, New York, NY. The book received attention from a variety of media, and Publishers Weekly
called it "exquisite." Her book also was published in Italy as Aspettando Gabriel (Edizioni
San Paolo, Milan, 2005) and in South Korea (Hainaim Publishing, Seoul, 2006). Her son, Gabriel, was
diagnosed prenatally with hypoplastic left heart syndrome (HLHS) and died
shortly after his full-term birth in 1999. Ms. Kuebelbeck edits the Web site Perinatal Hospice.org and also has been
invited to speak to medical groups and others around the
country about perinatal hospice and the issues raised in her book. She has been quoted by media including The New York Times and The Seattle Times in stories about perinatal hospice and related issues. She is currently co-authoring a new book about continuing a pregnancy with a terminal prenatal diagnosis, forthcoming from Johns Hopkins University Press.